Share Your Story

We also present Warrior Tales, your story in your own words, in a short video clip. If you’re comfortable, you can answer 2-3 questions about your experience with lupus. We do the recording/editing and post it to our YouTube channel and Walk to End Lupus Now page.

I was dismissed and had to endure many problems like endocarditis, headaches, and pancreatitis before I was officially diagnosed 5 years after that dismissal.

I have learned my triggers, how to manage my stress, and listen to the needs of my body.

I’ve also learned to prioritize my health in order to be able to do the things I love and take care of the people in my life that depend on me. I have become a women’s champion in self care, raising awareness and empowering women to advocate for themselves and others.

I say listen to your body if you feel something is wrong. Keep looking for the answers; it may take a minute, but once you get the answers, the healing process can begin.
Be informed.

Maria D.

I was diagnosed 13 years ago, but had been living with the symptoms for about 15 years. It was certainly 5 years when I began to take notice of symptoms and sought a rheumatologist due to family history.

Me diagnosticaron en marzo de 1993 y viví con los síntomas durante aproximadamente un mes antes de confirmarme el diagnóstico. Mi estilo de vida ha cambiado mucho desde que me diagnosticaron. Les diría que cuídense, cambien su alimentación, y busca ayuda.

Nancy L.

I was diagnosed in March 1993 and lived with the symptoms for about a month before receiving confirmation. My lifestyle has changed a lot since I was diagnosed. I would tell everyone to take care of themselves, change their diet, and seek help.

I was diagnosed 13 years ago, but had been living with the symptoms for about 15 years. It was certainly 5 years when I began to take notice of symptoms and sought a rheumatologist due to family history.

I was dismissed and had to endure many problems like endocarditis, headaches, and pancreatitis before I was officially diagnosed 5 years after that dismissal.

I have learned my triggers, how to manage my stress, and listen to the needs of my body.

I’ve also learned to prioritize my health in order to be able to do the things I love and take care of the people in my life that depend on me. I have become a women’s champion in self care, raising awareness and empowering women to advocate for themselves and others.

I say listen to your body if you feel something is wrong. Keep looking for the answers; it may take a minute, but once you get the answers, the healing process can begin.
Be informed.

Maria D.


Tell us your lupus story…